Monday, March 28, 2011

Happy 6th Birthday to My Angel

My beautiful, little girl turned six on Sunday, March 27th. We are celebrating not only her turning six, but also that after 3 years she graduated from Occupational Therapy. We went from being at "therapy" (physical, occupational & speech) for four afternoons a week to now being there one time a week for speech therapy. We are so grateful to Kathy, Aleks' OT, for her hard work with Aleks. She truly pushed Aleks and didn't graduate her until she had repeatedly passed numerous tests for her age level.
One of the lessons I learned from this, is that you have to fight for what you know is right with your child. You are your child's best advocate. Aleks original OT was good for the first year, but was ready to graduate her after that year. We knew that she needed more OT and wasn't nearly ready to graduate. We fought to get her another therapist and after 2 wonderful years she graduated with the skills she needed all along.
Some days I am a quiet advocate, other days it seems like an endless fight. My biggest fear is that I'll miss something. That I'll miss a battle for her health and well being that I should have been aware of. Like so many other moms of kids with special needs I have a full plate with Aleks, work and life. I have to constantly remind myself to stay present and alert to her changing needs. I also write this aware that it's not just me. I am blessed to have a husband who is so active in her life and her healing. It's a team approach and I count on his observations and insights to what he sees that I may miss. My hope and prayer is that we will stay aware, observant and not slow down in our quest for her health and healing. xo Melissa